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PROJECT / The Heart Tournament:

The disease is defeated and dull (symbolically).

Is the concept of symbolic grounding of disease sensible?

« The metaphors that are needed when we talk about cancer are actually drawn not from the vocabulary of economics, but from the vocabulary of war. Any doctor or patient who is a little attentive is familiar with this military terminology »(Sontag, 1979:85) 

The American writer and literary critic,Sontag, offers a reflection on the lexicon used to treat cancer. Sheis a writer herself who has been  affected  by thedisease,and sheis not the only one who associates the term cancer with a warriorlanguage. In a speech  in  1971, Richard Nixon used the term « war on cancer » to refer to the disease.

In this same context of war against disease, doctors have the role of strategist and patients are soldiers. One can associate in the chess game the player as being the strategist, where he will propose different tactics, combinations to defeat the opponent, this can refer to the doctor who will propose to the patient different treatments to eradicate the disease.

The stickman is represented by the pawns on the chessboard. Itwould send back the image of the soldier who himself goes into battle  against  theenemy who would represent  here  the disease. Illness can be portrayed    as a game of chess. The patient finds himself trapped by an enemy who is clandestine, unpredictable, warrior, conqueror, sometimes lurking, sometimes aggressive, and whose opponent is not sure that an opponent is truly capable of confronting him. In the patient, trauma is an « invasion involving the need to use all makeshift means to block the invader. »  

« I have not yet conquered what I am fighting; but I am not yet defeated either and, most importantly, I have not yet surrendered. I declare myself in a state of total war” (Zorn, 1979:260)

His real name is Fritz Angst,  this 20th  century Swiss writer recounts his battle with the disease, his diagnosis of cancer in his youth.

As in chess, the enemy forcibly introduces itselfby surprise or cunning without the right to be admitted. Indeed  in the game of chess everyone  has  his territory,his  space,  but  for the enemy to win,he must break into our space by surprise,  then he must  attack, and touch the king to win the game. As long as the king is not hit the continuous part and everything can be reversed if the right strategies are used to counter the enemy. Even if the game seems lost, the slightest mistake made by the enemy may be to our advantage.

Thus, as we said earlier, the patient’s body would be represented by the chessboard, the player’s pawns representthe  organs, the patient’s immune defense… and the opponent’s pawnsrepresent  the disease that is expanding  in the patient’s body. Similarly,  one can make a hierarchy of pawns, with small pawns that have a minor role and large pawns  that have a major role such as the King which is the most importantpiece of the game. The tumor cells that willdevelop in the body to touch our vital organs willin  some way illustratethe « King »  because once the vital organ reaches it would correspond to     death,  and therefore to  failure. One can also make a similarity with organ transplants for the patient. En effect, if we use the right tactics in the chessgame, if one of theminor pieces reaches the end of the chessboard, we can take some major pawns,   which could make us think of an organ transplant in the patient’s  situation. The patient must strive to integrate changes and losses, while maintaining his registration in a dynamic of life, with investments of different nature and modes. It’s also the same for chess, the player has to incorporate the changes and losses of his pawns while maintaining a good game dynamic. The Common  sense model of illness representations  (CSM) establishes that individuals create mental representations of their illness, based on the concrete and abstract sources of information that are available. Similarly, during the chess game, the player needs  to make a mental representation of the chessboard, the opponent, all the information available to fight the opponent …

 So, the concept of grounding the disease would seem sensible, because like the chess game, the disease would symbolize the fight that the opponent (illness) is fighting and the player who will use different tactics to counter all his attacks. 

If the child loses the game, would that mean that he does not win (symbolically) against the disease?

If one remains in a logic of play the objective of the person who is sick is to defeat his enemy, cancer. Winning your fight would mean staying alive, losing would mean dying. If the (therapeutics) strategies put in place by the doctor,  i.e. the player, are not effective in allowing the patient to defeat the war, it is a failure and Mat. Still,  nothing  prevents the player from playing a gameagain. Thisis not a definitive failure, and in the same way if the treatment fails it does not mean that it is the end  because other treatments  and solutions exist. Faced with a cumulative defeat, we must not give upr. Imustpersevere because the patient can win at the end of  the  10th  part or the  15th… Itis through  his failures that he  learns the weaknesses of his opponent and  learns  how to cope in the event of future encounters with  the same difficulties.

Depreciating the disease to a war does not really show the complexity of this experience, the relationship of the disease with the treatments.

Arthur Frank (2013) wrote about the disease that: « Surviving has no special responsibility than to continue to survive. Becoming a witness involves the responsibility of saying what happened. The witness puts into the word a truth that is normally unknown or repressed. The people who tell the stories of illness are witnesses who turn the disease into a moralduty. »

If the war against the disease is not always won, it is possible to tame and chronicize the disease. First,  the patient needs to connect with cancer. To create links, he must connect with the disease to listen to his message. This approach  puts  the  symptoms as not being the evil that should be removed at any prix. The symptoms would correspond more  to  alerts, messages from the body that we are addressed. Behind each symptom  hidesa consequence, a biological reason that justifies and explains  its  origin. Linking cancer would  establish a  cause-and-effect relationship between the individual’s experiences and the cancer. This conception  would call into question the fatality of the disease, where it would appear as a disorderly and uncontrolled disorder occurring in our random life. Cancer can  be like a program set up by our brain following an event such as  exposure  to a very intense stress episode. So in this case, creating links with cancer will naturally lead us to take an interest in the history of individuals affected by the disease, to understand the triggering event that causes their cancer.

The second attitude that the patient can put in place is to go out of an impersonal statistical approach to understand cancer. The statistical approach is unable to establish observable cause-and-effect relationships.  It  can only see inferences,  correlations,  withoutitbeing meaningful. For example,a study has shown  that  nylon stockings have a carcinogenic character. Indeed,  the researchers  observed that since women wear nylon stockings, the number of breast cancers has literally exploded  and this has been statistically verified. However,  correlation does not mean causality. This is not to say that it was the nylon stocking that caused the cancer, the two sets of data are only statistically related but we do not know if one is the cause of the other. This study illustrates that twoevents  can  be perfectly synchronous, but not related. Finally, it can be said that a statistical truth does not form a scientific law. Statistics are of no help in understanding and  taming cancer.

The third attitude would be to spend time with the disease and the people who also have it. In this approach, Léon Renard puts the sick individual back at the center of the therapeutic process. He will be interested  in  his history, his psychology, his family, his genealogy, his way of managing his stress, his way of dealing with the shocks of life. With this approach, the author  will be more interested in the patient rather than  his illnesses. Indeed, rather than  having a disoriented patient, projected into a cold and dehumanized universe,  stunned by alarming prognosis and paralyzed by the fear of death, Renard offers him to know the true origin of cancer, spending time listening to what the person has been through.

The fourth attitudeis to look for the causes of cancer in the sphere of the invisible. For nearly 50 years, cancer research efforts have been focused on the visible plane. By tracking carcinogens everywhere, studying heredity and genetic factors,  or  cell replication. All this has led  to   results, unproseed hypotheses, contradicted by so-called spontaneous healings. We are told how cancer develops but  notwhy, or why one organ is affected rather than another. It is not clear why not all cancers develop in the same way.  The German oncologist  Hamer  wrote:  « All  cancers are caused by a sudden shock, of dramatic intensity, which takes us against the odds and that we live in isolation. » It is possible to tame our cancers and cure them, solving the situation felt as conflictual and resolving the emotional impact in our psyche.

Finally, the last attitude that can help tame cancer is to take responsibility for our cancer, but also for our cure. As we have seen, cancer would result from an emotional shock that we could not bear, so we can say that we are responsible. Responsibles,but not guiltys. Thisapproach may seem  discouraging, but it is also hopeful. Also, if we are causing our cancer, as a result of the shock we had not been able to take, then we also have a grip on healing. We become responsible for what we have tamed. 

Through this approach, the patient who was passive basic,who underwent medical treatments to eradicate the disease, becomes an active individual who tames his cancer and heals himself by taking action.

How can chess become a tool for progress and improvement for these young people with cancer?

Benjamin Bloom (1956), an education psychologist, has created a classification of the skills involved in learning. This taxonomy (meaning the « classification rule ») determines six cognitive skills ranging from the simplest to the most complex, to which typical operations correspond.

Knowledge: it is memorizing information. Operations:  define, duplicate, name, identify, reproduce…

Understanding: Interpreting information based on what has been learned. Operations:  classify, describe, recognize, rephrase, translate…

Application: Selecting data to complete a task or solve a problem. Operations:  demonstrate, illustrate, interpret, plan, schematic…

Analysis: It is the relationship of facts and statements or questions. Operations:  estimating, calculating, criticizing, distinguishing, questioning…

Synthesis: it is the synthesis of ideas into a proposal, a plan, a new product. Operations:  collect, build, formulate, manage, propose, install…

Evaluation: it is the fact of estimating and criticizing according to criteria that one builds. Operations:  arguing, evaluating, justifying, predicting, encrypting…

When the child plays chess, he  uses  these6 learning skills while having fun, the more the child plays, the more he uses his skills and the more they are stimulated.                                                                                                                                     Failures  in learning processescontribute to emotional and cognitive and psychomotor development. (Early Years Skills) It  also  develops  skills such as concentration of attention spatialization thinking logic imagination and creativity. It  encouragesthe consideration of alternatives and help to inhibit one’s reflexes and also allows to give priority to reflection (thinking before acting).                                                                                            The EYS program for kindergartens aged 4 to 6 → giant chessboard.  This activity has helped    children improve their self-esteem and has also enabled children to build relationships with their peers on the basis of loyalty, responsibility and cooperation. From a cognitive point of view, he strengthened the capacity of spatial-temporal organization, learning numbers and letters through psychomotor experiences, learning and experimenting his rhythm, concentration and reacting to stimuli, self-control and understanding notions of possibilities and constraint, learning respect and cooperation through play situations.

Critical mind:

This game, enriched the critical mind of the player, indeedcritical thinkingimplies upstream reasoning is a logical thought structured around skills, like the ability to compare, to classify, to cut in sequence, to determine the causes of effects, to schematize, to create analogies, to reason in anduciveducive way, to anticipate, to plan, to formulate hypotheses and to criticize…

Improves creativity:

The purpose of creative thinking and stimulate curiosity and promote the independence of the mind. A study that was conducted by Aghuzumtsyan and Poghosyan (2014) To show that children who took chess courses had a higher score in creativity compared to the larger one who did not take chess lessons.

Improves brainperformance:

From the brain’spoint ofview, this strategy game would promote brain growth:  it defies the brain and stimulates the growth of dendrites, the bodies that send signals to the neuronal cells of the brain. With more dendrites, neural communication in the brain improves and becomes faster.

Over the past 50 years, several empirical studies have shown a direct relationship between cognitive and task games.

According to a longitudinal study by Bilalic etal.  (2007),

Or 66 children who started playing chess were followed for two and a half years and they repeated the same measures on:

→ Chess Skills

→ Motivation

→ Intelligence

→ Amount of practice

→ Personality.

The results suggest that: in the early stages, there is a strong relationship between intelligence and competence, in later stages this relationship is altered by the amount of practice and interest.

A thought-provoking and problem-solving aid:

A chess match requires quick thinking and problem solving on the fly because your opponent is constantly changing his settings.

Giovanni Sala sandal.,  (2017) have demonstrated that experts inx  chess x games perform better than non-experts in standardized intelligence tests.

Chess players were better than non-chess players in cognitive ability tests.

A 1992 study of 450 fifth-grade students in New Brunswick found that those who learned to play chess scored significantly higher on standardized tests than those who did not play chess

 A German study has shown that when chess players try to identify positions on the chessboard and geometric shapes, the left and right hemispheres of the brain become very active. Their reaction times to simple shapes were the same, but experts used both sides of their brains to answer position questions more quickly.

 A study on the recording of eye movements, Groot and Gobet (1996).

Showed that during the first 5 seconds of the eye recording, the results showed an obvious difference between experts and chess novices. Experts have faster fixation and they look more quickly at the main characteristics of the situation.

Ina 1991 study, Dr. Stuart Margulies studied the reading performance of 53 elementary students who participated in a chess program and evaluated them against non-players in the district and across the country. He found as results that playing chess caused increased performance in reading. In a district where students remained below the national average, district children who played the game finished above the national average.

Psychological support: 

Chess has also been used successfully in the field of psychological support. The present study by Juan Pedro and Al., (2019) studied the influence of chess-solving tasks on heart rate variability  andelectroencephalography of adolescent chess players. The results indicate  thatheartrate variability decreased during difficult problem-solving tasks in adolescent chess players  and  that  a variability in heart rate and electroencephalography could be used to control stress during cognitive tasks in adolescents.

Helps prevent Alzheimer’s disease:

Some traits of cognitive decline appear in physically and intellectually fit adults as early as their twenties or thirties (Salthouse, 2009). These markers of decline may seem relatively minor compared to those that later appear as dementia or Alzheimer’s disease, but it is never too early to take care of our brains.

A recent study featured in The New England Journal of Medicine found that people over the age of 75 who engage in brain games such as chess are less likely to develop dementia or Alzheimer’s disease. The saying about the brain « use it or lose it » certainly applies here, as a sedentary brain can decrease brain power in general. That’s one more reason to play chess before he turns 75.

Dr. David Shenk, author of The Forgetting, had this comment on chess as an antidote to Alzheimer’s: « You have to exercise your brain. Chess is particularly structuring. Easy to learn, it opens up endless perspectives: there is always something to learn. »

Teaches planning and foresight:

One of the last parts of the brain to develop during adolescence is the prefrontal cortex, the area responsible for judgment, planning and self-control. Because playing chess requires strategic and critical thinking, it helps promote the development of the prefrontal cortex and helps teens make better decisions in all areas of life, perhaps preventing them from making an irresponsible and risky choice.

Campitelli and Gobet (2005), asked players to choose a move in less than 10 seconds. The results showed that the great masters of the game have 50% good answers and thestrong players of the club about 5% of good answers.

Experts at chess, show a very selective research in the game, they say that it sees the solution, but that they often can not verbalize how they solved the problem. They explain that they do it intuitively.  In routine problems (chess games), experts do not seek more than no experts.

Optimizes memory enhancement:

A study of the 6th grade of the Pennsylvania school found that students who had never played chess before, had significantly increased their memories and skills after learning to play.

Chess player results are widespread in almost every area of expertise: experts demonstrate remarkable automatic memory for domain hardware. Even without the intention of memorizinganything. 

The perceptual knowledge of experts may explain the phenomenon of intuition. They have very specialized knowledge partly in piece form, this can lead to transfer difficulties.

Improves stroke recovery:

Failures develop fine motor skills in people with disabilities or who have suffered a stroke or other similar accidents. This form of rehabilitation requires the movement of chess pieces in different directions (forward, backward, diagonal forward movement, diagonally backwards), which can help develop and refine a patient’s motor skills, while the mental effort required to play the game can improve cognitive and communication skills. The game can also stimulate deep concentration and calm, helping to relax patients who experience different degrees of anxiety.

In conclusion, chess can become a tool for progress in these young people because it brings all the cognitive inputs that the child needs and even can improve them. The game uses all the learning skills, the more the child will play the more stimulated he will be and the better willbelearning skills. It can be psychological support for the patient, it can manage its stress, if the child feels stressed, playing will allow him to reduce his stress. Failures can improve thinking and problem-solving skills. With this game, the child will have a better perseverance in the game and even in the disease because he will have learned that even in seemingly unfavorable situations everything can change. 

Bibliography:

https://www.cairn.info/revue-cliniques-2011-2-page-108.htm

https://strathese.unistra.fr/strathese/index.php?id=1155

https://www.sciencedirect.com/science/article/pii/S0031938419305700

Cliquer pour accéder à ogf3fr2-180322.pdf

http://rknights.org/wp-content/uploads/margulies.pdf

https://reader.elsevier.com/reader/sd/pii/0001691894900035?token=C2049AF876E45E274A5BF68AAE21B1648521D49C879F1DED71A166CA10F99C2C9918DA94F7BDED9BB3907B5B93B08885

Cliquer pour accéder à 1563348295_EXQ042.pdf

Traduit par Shauna Langereux

Hello 👋 I am TOUDOU 🧸❗️ #PharmaVie and its creator Marie-Claude SANTINI has given me a mission ! To be the support of children during their hospital care ❗️ Thanks to the association ARCoeurEnAction I will soon be meeting a new friend who has to undergo chemotherapy. You know sick children who would like to have me like friend 🧸❓ 👇🏽 So like 👍 love ♥️ share 🗣 as much as possible your comment❗️this page 😘 the association will do the rest 😘❗️🧸🧸🧸🧸🧸🧸🧸 #solidarity #care #cancer #children #happiness #toudou #accompaniment #INTERNET #partnerships

When comfort care comes with oncology

What is cancer?

Every living creature is made up of billions of small units called cells.  Each of these cells has a predefined functioning program. However, over the course of life, these programs can become disordered and the functioning of the cells can degenerate.  At that point they can be repaired or die, restoring normal body function without anyone noticing. Unfortunately, they can also survive and continue to function in a totally disordered manner and are referred to as cancerous cells.  These will multiply in an anarchic way until they form a mass (= tumour). These cancerous cells can remain in one place and are referred to as a benign tumour. However, after some time, they may begin to invade neighbouring tissues and spread throughout the body via the blood and/or lymphatic vessels, forming other cancer sites and other tumours at a distance, known as metastatic tumours. For this reason, it is best to remove a tumour at the benign stage to avoid potential dissemination.

Breast Focus 

Breast is made up of the mammary gland, its biological function is to produce milk to feed a new-born baby. The mammary glands are composed of 15 to 20 lobes, between these lobes there is some fatty tissue that gives the breast the shape we know it.

➢ It is in the lobes that the secretion of milk is done by different mechanisms regulated by hormones during pregnancy.  The milk is then transported to the nipple through what are called galactophoric ducts, which are often the cause of breast cancer, due to a degeneration of the cells that make up these ducts. Men also have breast tissue! Even though it is not developed, in rare cases they can develop breast cancer. 

➢ Some figures: Nearly 54,000 new people are affected each year by breast cancer, which is the most common cancer in women, affecting one in nine women. The optimism is there! Indeed, thanks to medical advances in recent years, more than 3 out of 4 breast cancers are cured today.

Treatments 

When the cancer diagnosis is done, health professionals assess the stage and type of cancer (not all types have the same consequences), depending on this, appropriate treatments are proposed.

There are three types of treatments that can be used alone or combined with each other in the curative setting:

  Surgery  Radiation therapy  Drug treatments  
  Delete the tumor as a whole               Limiting the risk of re-offending and maximizing the chances of reoffending Healing
  Conservative breast surgery:   It is a partial mammectomy, it is also called a lumpectomy → we try to remove only the tumor and a small part of the tissues surrounding it to preserve most of the breast.   This type of surgery is proposed in cases of cancer that does not infiltrate nearby tissues and is therefore not extensive, so it is still possible to remove only the group of failing cells that make up the tumor.      Total breast surgery:   It is called mastectomy: the entire breast is removed.    Again, it depends on the stage of the cancer and its aggressiveness, it is unfortunately sometimes impossible to preserve part of the breast.                         This technique is most often used after surgery to complete the ablation action and minimize the risk of recurrence.   It is a therapy based on the use of ionizing radiation to destroy cancer cells by preventing them from multiplying. These are directed precisely at the area to be treated, while preserving as much as possible healthy tissues and surrounding organs.       Chemotherapy:     The goal is to weaken the cells which will slow their development and thus by extension the development of the tumor with. This is usually set up in advance of a mammectomy to ensure maximum effectiveness of surgery.   Targeted therapies:    Some cancer cells have specific elements on their surface. (certain proteins) that can be targeted and thus serve as a lever for the action of the treatment called targeted therapy because it will target these proteins to destroy them and destroy the cancer cell that presents them at the same time.    Hormone therapy:   Hormone-based treatment if the tumour is sensitive to it.   

The final choice always comes to you, during a specific consultation, the doctor who follows you announces the characteristics of your situation, explains the treatments offered, the expected benefits as well as the possible side effects. If surgical treatment is recommended, the surgeon explains the objectives of the operation, the technique he will use, the consequences and possible complications.

Before this consultation, consider writing down all your questions: what type of intervention will be carried out? What for? How does the operation work? What are the risks? How can I best prepare myself? What will happen after the procedure? What will be the consequences of the operation on my everyday life? Finally, do not hesitate to be accompanied by someone you trust.

All this is never fixed but can evolve along the way depending on your health and your reactions to treatments.

Everyday life 

Following an operation, fatigue is normal, but it should not be trivialized, we should not hesitate to report it. A stay in a convalescent home may be prescribed by the doctor. The feeling of pain as if the breast removed was always present is normal, we speak of phantom pain.

The post-surgical scar may be considered unsightly and if the breast is retained, it can be deformed. Restorative surgery is possible if you wish, to mitigate this. 

After-the-day anxiety, emotional fatigue, loss of bearings, altered body image and difficulty communicating with loved ones can disrupt physical, psychological, and emotional balance. Everyone experiences illness and treatments differently, depending on their history, personality, family, social and professional relationships. In any case, it is important to express your feelings and questions. Free consultations with a psychologist or groups of words with other people in the same situation can be a good way to express yourself and to engage in topics that you would not necessarily want to talk about with those around you.

Finally, cancer management is comprehensive and includes all the care and support you may need: from diagnosis, during and after treatment (psychological support, social support, pain management). The practice of adapted physical activity also helps to improve the quality of life throughout the care journey as well as the response to treatment, finally, smoking cessation is always beneficial, it positively influences tolerance to treatment and the prognosis of the disease. Nutritional support can also be useful in preventing, detecting, or treating undernutrition or, conversely, being overweight, which could be part of the consequences of treatment and disease. 

What about the self-image in all this? Leave time to time …

Body image can change and impact self-esteem as well as morale. Everyone reacts differently, but the acceptance process can be a real mourning process for some people and can be long, so it is important to be lenient with yourself and to leave time to time.  

Physical difficulties such as hair loss, weight loss or gain, skin weakening, redness, itching of the skin, weakened or cracked nails, damaged lips or mastectomy may occur because of treatment. In addition, certain types of hormone therapy led to early menopause, including period rest, hot flashes, vaginal dryness, decreased libido, sleep and mood disorders. 

We should not hesitate to confide in the medical team that follows you, regardless of the subject, we do not always control our feelings and sometimes it is good to talk about it, there are often solutions that we would not have thought of alone. In addition, speech is sometimes liberating.

Beauty/wellness care, because taking care of yourself is never superfluous – onco-aesthetics. 

For about three years, a beautiful branch of aesthetics has been gradually taking place: it is you guessed it: oncoesthetic. 

We also speak of supportive oncology care; it is care provided free of charge in the hospital or in structures dedicated in the city by specially trained socio-aestheticians. Organized individually or in the form of collective workshops, these privileged moments combine beauty treatments (face care, hand and foot care, modeling, make-up) technical advice, listening and a moment ofrelaxation. A study carried out by the L’Oréal Foundation in partnership with the Institut Curie, Patients and Network and Rose Association in 2017 among 1,166 cancer patients analysed the impact of beauty and wellness care on the quality of life of patients. It shows that this care offered by socio-aestheticians is considered very beneficial, for 84% of patients, that they constitute a moment of relaxation and well-being, but that they remain insufficiently accessible.  

Some associations, brands and campaigns emphasize the value of taking care of yourself when you are affected by breast cancer to live the disease better and give yourself every chance to fight it during but also after the disease. 

« Onco-aesthetics is beyond aesthetics. It is a real process of taking care of patients. It’s all about howto care for and look atwomen, » says Dr. Alain Toledano, oncologist, radiotherapist and president of the Rafael Institute, the Post-Cancer House.

There are several institutes and associations offering treatments for the whole body: relieving the hands, rehydrating the face, strengthening the nails, sublimate the hair, massage the body, counseling in wigs or even make-up workshops for those wishing it. The products are chosen according to each person in order to minimize the allergen risk. For example, some products are odourless so as not to aggravate the nausea that may be induced by chemotherapy. 

Beyond the physical benefits, the psychological support provided by such care is not negligible. Self-confidence is intrinsically fluctuating over the course of a life and is never acquired, so sometimes some events are not without impact on it, learning to take care of oneself otherwise facilitates the path to the acceptance sometimes of a new self. The external image may change but a person remains fundamentally the same, however, reappropriating « his identity » can take time, again, let’s leave time to time. 

« Never a night has conquered dawn and never a problem has conquered hope” (Bern William)

Finally

By searching the internet for skin and nail cosmetics suitable for people in treatment or post oncology treatment, you will find many brands offering suitable products such as: Even Cosmetics, Ozalys, Eyeca and others, it’s up to you to choose what seems most suitable for you.

You can also find several associations working in this direction: 

  • Oncobulle Association:

« Supporting changes in body image is an important issue in oncology. Reclaiming one’s body and regaining self-esteem are essential to regain a balance of life, reintegrate into social and professional life. – COS project:  

« To offer people with cancer the opportunity to be accompanied differently if they wish so that they can best focus on their recovery. »

  • Rafael Institute:

Several areas of care are envisaged:

  • ROSEUP Association:

Here’s how their project is defined: 

  • INFORMER: Bringing free quality information to all women with Rose Magazine
    • ACCOMPANIED: Women suffering from cancer, help them find solutions to deal with the consequences of the disease on their daily lives in all its dimensions, both private and social, and to feel less alone in this long journey.
    • DEFEND THE RIGHTS: Acting with the public authorities to defend the rights of these women to retain their full place in society.

Pink houses also offer onco-aesthetic treatments at home. 

In order to potentially discover other associations that might seem useful to you, you can refer to the « Useful Resources” section of the patient guide to breast cancer treatments, you can simply find this guide on INFO CANCER. In this guide there is also a lot of information about breast cancer, treatments, management, etc. in detail. 

Sources of the article: 

CANCER INFO – (2013) – Patient Guide – Treatments for Breast Cancers

Susie Bourquin – (2018) – website: Infirmiers.com – Beauty is not futile but vital for patients.

Websites: Oncobulle, COS, Rafael Institute, ROSEUP.

Johanna Amselem (Health Journalist) – Doctissimo – Breast Cancer: Beauty Care

A Committee ready to welcome all those who share our values and our desire to see the light shine in the eyes of the Other, the glance of happiness and the desire to share.

Dominique Giorgi-Font.

These few words are part of the message that the President of the « Comité reine de Coeur » shares. But what does this Committee consist in? you will wonder. The « Comité Reine de Coeur » was created in February 2018 by the President Mrs Dominique Giorgi-Font. Different actors are taking part: we find partners, delegates and young girls asking for the title of Queen of Heart. The Queen of Hearts holds an important role in this organisation. She is the future true ambassador of her village or town, which she must have at heart to represent as well as possible, both in her behaviour and in her language. She will be the emblem of her city and must be aware of the importance of this role. She must always keep in mind the important role she plays and the importance of the image she presents. Once elected, the Queen of Hearts will have to be very vigilant about the content of the messages and photos that she may be asked to communicate via social networks, for example.

The Committee then tries to emphasise a young woman’s physical attributes and moral values, but above all her qualities of heart. Indeed, because the women candidates’ hearts are sufficiently big to open up to the happiness of everybody. For that, she will participate, as much as possible, in the different cultural or festive events that will take place in the city where she has been elected. She undertakes, for example, to be part of the Court of the elected Queen of Hearts and to take part in the shows during the other elections. In addition, she also undertakes to represent her city at the regional final.

Even though a Queen of Hearts must correspond to certain physical standards, it is mainly the moral and behavioural criteria that matter, as their beauty is not the only one of their advantages. She must, among other things, be available, attentive, patient, serious and discreet. We cannot list here all the qualities that these young women possess. The assets and qualities associated with the position of Queen of Hearts go hand in hand with the duties to be carried out. Indeed, the most important element is that these queens must have a real desire to get involved and therefore have a real project concerning a charitable action in favour of one of the two charities supported by the GF Mode et Beauté Association and the Queen of Heart Committee. We find among these associations the CEw organisation, which brings together socio-aestheticians who carry out free beauty treatments in cancerology. In addition, this association contributes to the enrichment of its members’ professional careers and boosts their careers with the aim of developing them and giving them meaning. In this way, it contributes to the recovery of confidence, support and professional integration. While the association Rêves de gosse militates for the acceptance of difference, through exchanges of ordinary children with extraordinary children. More particularly, the action brings together, around an educational project lasting many months, children with disabilities, dented by life and illness, socially disadvantaged children, PJJ minors, and ordinary children for the acceptance of differences and inclusion. Therefore, the organised events are always with the purpose of bringing moments of joy to those who are often the most deprived. This once again underlines the importance that the Committee attaches to the figures of the young women who are chosen to represent their cities. Beyond the physical appearance, it is the actions and commitments that are encouraged and highlighted. Involvement in charitable associations and dedication to these important causes, reflect even more these values inherent to the Queen of Hearts Committee. In this way, we may hope to leave a trace of our passage in the lives of those around us, a trace on earth: by acting through works whose beauty is not ephemeral. In the end, as the Kabyle writer and doctor Hacène Mazouz so aptly put it, physical beauty fades and withers with time, the heart’s beauty remains eternally.

https://www.facebook.com/comitereinesdecoeur

https://cew.asso.fr/

Article rédigé par Mukkades USTAALIOGLU.

Queens Of Heart at CHANEL’House
Queens Of Heart at National Assembly

When we are looking for the definition of beauty in the dictionary, the Larousse suggests two main ones. Firstly, beauty is defined as the quality of someone, of something that is beautiful, that corresponds to an aesthetic ideal. In a second step, beauty would define the character of what is worthy of admiration by its intellectual or moral qualities. From this last sentence, we can therefore understand that this notion of beauty, which can be quite abstract, is an essential element for the personal well-being and good living in society, since it involves intersubjective dimensions, interactions with people in our environment. These elements are then found again in the convictions which found the CEw France. Indeed, beauty is not futile, it helps to live better.

The CEw defines itself as the first international network of beauty professionals. In 2014, it celebrated its 60th anniversary and counted 8,000 members around the world. In order to understand the choice of the name for this network, Cosmetic Executive Women, it is necessary to understand its history. The CEw was founded in 1954 in the United States as a social organisation for women professionals working, initially, in the beauty industry. Later, in 1975, the group expanded and began to focus on the recognition of the professional work achievements of women in the industry. We understand that in its early days, the organization was limited to women, and put particularly by highlighting women’s talents and careers by offering them unique opportunities for exchange. Nevertheless, this women’s network has been open to men since 2016, in France. Overall, the CEw participates in the enrichment of the course of its participants and energises their careers with the aim of developing it and him/her. make sense. In this way, it contributes to the regaining of confidence, to the accompaniment and professional integration. To this end, the organisation was launched as a network in 1985. professional, by offering seminars, conferences, and mentoring. These conferences are then based on the sharing of experiences with the aim of thinking and anticipating a future engaged, responsible, and innovative in beauty.

This network undertakes initiatives and intervenes at an international level. It brings together members from all over the world. It also launches the « Member Connect ». It is composed of three associations: CEw US, CEw UK and CEw France. CEw France was founded in 1986, under the leadership of Michèle Meyer. This French subsidiary then struggles to set up concrete actions such as the CEw Beauty Centres and the CEw Olfactory Workshops. The first Beauty Centre was then created at the Gustave Roussy Hospital in 1992. The aim of these centres is to design, equip and finance programmes of free individual beauty treatments at the hospital for patients. In 1998 the CEw Beauty Centre Association was created. And since that date, these Beauty Centres have received numerous professional and medical awards, dedicated to their actions. The first Olfactory Workshop appeared in 2001, in partnership with IFF (International Flavors & Fragrances). These workshops offer an olfactory stimulation activity to patients who have suffered various traumas. Nevertheless, the actions of this network are not limited to these Beauty Centres and Olfactory Workshops. Indeed, in 2001, the CEw Foundation launched a programme called Cancer and Careers, designed to provide support, education and inspiration to cancer patients and survivors starting or developing a career, and to support newly diagnosed members. The program focuses on supporting people affected by cancer in any industry, not just the beauty industry. It is supported by donations from association members as well as corporate and individual sponsors. It is because of these different actions and movements that we see the first edition of the « Achiever Awards » appear in France.

Through all this information, we can highlight a few points. Indeed, we can understand that the well-being of a person with or without pathologies is considered in the perspective of several dimensions. We therefore cannot evoke interior serenity by considering only one point of view. The CEw then try to apply this principle as comprehensively as possible. Thus, this network has tried to consider personal fulfilment through the dimension of professional development. This is also true for people with heavy pathologies such as cancer. In this way, to a certain extent, to allow to turning disadvantages into strengths. We cannot change events that in our lives, on the other hand, we can try to change the way we see ourselves. And as Ernest Hemingway illustrates well enough, life breaks all the world, and then some become stronger in places where they have been broken.

https://cew.asso.fr/

Article redacted by Mukkades USTAALIOGLU.

Traduction par Shauna LANGEREUX

etc…

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interview in English of Mélanie LEBIHAIN, author of the book: « At The Heart Of My Fignt ».

1 – Did you want to become a writer when you were little?

I never thought about it. It wasn’t in my plans. I wanted to become a schoolteacher or work with
handicapped children.
2 – What made you want to write books?

It became obvious when I fell ill. Through my book « Au coeur de mon combat », I wanted to bring
comfort to patients and also to raise awareness and inform about breast cancer.
3- For you, being a writer is more a profession or a passion?

For me it has been a passion since I wrote my first book. To make it a profession, you need a lot of
imagination and great success. But I’ll give it a try…
4 – Do you have other passions than writing?

No, I have no other passion. When I was little, I used to ride horses with my parents and my brother
and I loved it. But when I grew up, with family life and work, I stopped.

5 – What are the good and bad sides of writing?

Writing has given me more self-confidence. Then when I write, I don’t think about anything else, it’s
pleasant, it’s a really good moment of relaxation and serenity.

The bad side, I think, is that it’s hard to stop. Once you start writing, time flies by, the hours fly by
and during this time you don’t do anything else. So it’s very important to take things into account, to
have very distinct times between writing and family time, for example.

6 – Where do you write? At what time of day? How much time do you spend writing?

So that’s precisely why I write when I’m alone at home. The children are at school, I’m quiet, sitting
on my sofa and I put the words down on paper. It’s often in the afternoon during my quiet time when
I devote 2 to 3 hours to writing.

7 – What is your favourite book?

Mine! ( laughing )
Although I don’t love writing, I read very little unfortunately. Besides, this is something that will have
to change because reading is very important and I am slowly getting back into it.
As a teenager, I read several times a book that touched me deeply. It was Helen Keller, Deaf, blind
and hard of hearing. I loved this book, this poignant story about a very brave little girl.

8- Is it easy to be published?

Oh no unfortunately it’s very complicated. There are a lot of publishing houses, some are owned by
publishers, others by authors. It’s very complicated to find your way around when you know nothing
about it. That’s why I’ve started self-publishing. I managed everything myself, from creating the cover
to the body copy and the publication. And I’m very satisfied with it.

Au Coeur de mon Combat / At The Heart Of My Fight

9- Could you tell me a bit more about your book and explain to whom it is addressed?

It retraces my journey through breast cancer. It projects you into my story, you become me.
It is intended to help people in need, to help families so that they can better understand what they
are going through. But also to the nursing staff in order to better respond to our needs and our
questions.
But above all, I wrote it to make as many people as possible aware of this illness which can affect
everyone.

10 – What prompted you to write it?

My goals were to help, accompany and raise awareness.

11 – What was your writing process, from the idea to its completion? How long did it take you?

I followed the chronological order of my journey. The beginning was the most difficult. Where to
start, what to say and how? Then once I was gone, everything followed quickly with my fresh
memories.
I organised my chapters and wrote as I thought. I spent a lot of hours on it. All in all it took me
several months, almost a year. Not only the writing, but also the layout, the creation of the cover….

12 – What difficulty(s) did you encounter while writing this book ? How did you overcome them?

I can’t say that I encountered any difficulties during the writing process. Everything was going pretty
well, the words came easily.

13 – How did you find an illustrator and a designer for your book cover?

For the cover I did everything myself. There, I encountered some problems. Being a first time for me,
I had to do a lot of tests to make sure everything was right.

14 – How do you ensure the promotion of your book ? What is your promotion strategy ?

Promotion is essential to make the book known, so I talk about it a lot on social networks. I’m on a lot
of groups. Reading groups, sales groups or cancer groups.

15 – In your opinion, what is the best way to promote a book? In your case, what works best?

I can’t answer that question. It’s really not easy to promote a book. I am still looking for better ways
to do it.

16 – What have you gained from writing and publishing this book?

It gave me confidence. I realised that when I want I can. Now, when I have an idea in mind, I do
everything I can to make it come true. I believe in my dreams.

17 – What advice would you give to someone who wants to write a similar book?

My advice would be to go for it. That’s the hardest thing to do. But once you’ve started, everything
becomes clear…

18 – Finally, where can you get your book?

Translated with http://www.DeepL.com/Translator (free version)

https://www.bod.fr/librairie/at-the-heart-of-my-fight-melanie-lebihain-9782322252749

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TEAM PS RACING

Hello everyone
Team PS Racing is made up of an amateur rally team from Til-Châtel which plans to take part in 5 rallies, including 2 national and 2 regional rallies aboard a Clio 16S for the 2021 season which will take place from March to November. To participate to this great adventure, we are looking for sponsors ready to support and trust us. This sponsorship would allow us to have your company’s name on our car as well as the visibility on the different social networks (Facebook, Instagram, LinkedIn…). For a few years now, the professional and amateur rally has been increasingly attracting more and more spectators to the roadsides of France. To this end, more and more photos and videos are being broadcast on the net. These videos and photos generate a significant amount of publicity for our sponsors. We are all living through a difficult period with the health crisis which is affecting us directly. We would like to inform you that for any financial aid, you will receive a CERFA document from our association which will allow you to benefit from a tax credit of 60% of the amount of money allocated. You will find attached the full details of our project. Remaining at your service for any further information and expressing our gratitude in advance for the attention you will give to our approach, the association Team PS Racing presents you its respects.

Sébastien BEAUPOIL

https://www.facebook.com/teampsracing21

Traduction : Shauna Langereux

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COVID-19

Specialists warn that their patients with particular pathologies are not visiting them any longer!

The health crisis changes everything. Except your affection.

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Serious illnesses such as cancer or rare forms of diabetes can make you weaker and at risk when facing the pandemic. However, it is essential that you continue your treatments and medical check-ups related to your already serious pathologies. We know that the COVID-19 situation is all the more worrying for you, but the consequences on your health and quality of life could be devastating.

In these very special times, your specialist and/or general physician will be able to advise you in the best possible way, according to your personal and medical situation. So stay in touch with them and continue taking care of yourself. You deserve it!

Florine Fourneau 

THE COMFORT OF CARE : WHAT ABOUT MEN ?

When we talk about cancer care, we almost instantly think of women. Hair loss, brittle nails, skin that gets damaged during the treatment phases – these are just some of the painful steps that have to be faced.

Cette image a un attribut alt vide ; le nom du fichier est model-2598393_1920.jpg

In that sense, many salons and spas compete in ingenuity to accompany them and give them a few moments of delight. Cosmetics are adapted and some start-ups get involved by creating fashionable, bright and colourful headbands or even modern and feminine wigs. A touch of life and beauty through the struggles encountered.

But what about men? Do they have at their disposal all these services from which the women benefit?

THE MALE AESTHETIC

We do not think about it, however, a man with a disease can also see a decline in his integrity. He is apparently brave, but probably does not offer himself to a sensory experience that could help him and bring him significant comfort.

Important to know is that men are just as concerned as women about side effects. The treatments, sometimes very heavy, do not make any distinction. These men therefore have to adapt their hygiene to a new way of life, in order to fight against physically and morally painful consequences.

However, over the years, men have become less used to being interested in their aesthetic side than women. Although today, specialized care is on the rise, in some cases it is a complete learning process for them. The first steps can raise doubts and leave them helpless.

Should we forget them for all that? Comfort is a necessity, accessible to all, a freedom we can grant ourselves , healthy or not. It would be absurd to separate the sexes whereas disease takes over every dignity.

Men’s care and ideas are being more and more implemented to provide both physical and aesthetic support to men. These are moments of hope for them, a way to take responsibility of their health.

Workshops, conforming and well-adapted cosmetics… the different collections offer encouraging solutions. It remains obvious, however, that it is necessary to conduct the therapeutic message and to provide essential support.

THE RIGHT CARE ROUTINE

A male routine can be considered to provide them with all the comfort and softness required during their treatments.

  • Radiotherapy, for example, can severely irritate skin tissue, as well as causing dryness and sensitivity.

Les Bracelets Rouges

The French series Les Bracelets Rouges (« The Red Bracelets”), is already on Season 3. Have you heard about it?

Les Bracelets rouges, l'épisode 4 de la 3ème saison sur TF1 ce lundi 23 mars

 It is rare to see a French medical series that has such success!

This series tells the story of how children and teenagers experience their hospitalizations. The cause: pathologies or accidents of life. Some have cancer, others have had a road accident or are in a coma. A real solidarity – and even friendship – is built between them. How do they live their hospitalization? How do they feel about their disease (and its consequences)? How do they live their lives as teenagers or children in such conditions?

Families are not left out. The series allows us to share the feelings of parents and relatives who often feel helpless and powerless in front of their children’s suffering and other difficulties. Whereas the young actors who play the teenagers are unknown to the general public, guests have taken on the role of their parents.

Young people touched by such diseases watching the series will find reassurance in this. They can compare it with their own reality. This “fictional series” is a hit and we know why: all of the actors are more than convincing.

The democratisation of a subject rarely raised for the general public is something our association Coeur en Action is definitely pleased about. We know that talking about a subject at prime time makes it even more accessible.

Season 3 is still ongoing and we bet that more will follow! Rendezvous on Monday evening, on the French channel TF1.

Florine Fourneau

STARS A NU

At the beginning of 2020, the French channel TF1 presented a concept that expended beyond our borders.

Stars à nu » : TF1 met des personnalités à poil, mais c'est pour la bonne  cause

This TV show trained a group of guests (8 men then 8 women) to prepare to do a full striptease in front of an audience in order to raise people’s awareness of men’s and women’s cancer screening.

To remove the stigma attached to these tests and to improve people’s rapport with their own body, it is essential for everyone to overcome his or her fear of the doctor and of a possible frightening diagnosis. The purpose of the TV show is also to allow you to lay yourself bare, not in front of an audience but in front of your doctor. The show also includes explanations about cancer screening, especially breast and prostate cancers.

It is not an easy thing to reveal yourself, especially if you fear a medical or an aesthetic judgement. But this step is required in order to receive the care and treatment you require, or to reassure you, if you do not.  

We know how important cancer screening is. In fact, the French health care system completely covers these costs, to evaluate your health and, if necessary, to ensure prompt care and treatment.

For the most modest of us, a medical appointment or a treatment in the hospital forces us to overcome our modesty. This is essential to take back control of our body and to begin the fight against the disease.

So, we lay ourselves bare, but it is for our own good!

Florine Fourneau

De plus belle

You certainly know the comedian Florence Foresti! One of her most famous sketch is about Barbie’s plane. She was also the presenter of 2 Caesars ceremonies (including 2020… without trying to reopen the debate!). France’s “favourite female humourist” has also appeared on the big screen in various films.

One of them, De plus belle, a 2017 French film directed by Anne Gaëlle Daval, starring Mathieu Kassovitch and Nicole Garcia, was a relative success. Florence Foresti plays the role of a breast cancer’s survivor, trying to rebuild her life and live with her new image as a woman, not so different and yet so profoundly changed. How to rebuild her life after such an ordeal? How to feel like a woman again? How to experience the sensual relationship with another? These questions must touch all women, not only those who have lived through this drama.

The question of appropriating our body and living our femininity is not something innate. We are born as men or women but we don’t learn how to represent our gender. We must learn to see ourselves as we are, to appropriate our body and to love it just as it is, no more, no less, with its qualities and flaws. This movie gives us a strong reminder: “Be kind to yourself”. What a revelation!

Our association knows how hard this step is. Comfort is not a luxury but a deep and necessary need, throughout this long and sometimes painful struggle that brings us back to ourselves. The 2.0 version of ourselves.

What if you took advantage of these special times to (re)discover De Plus Belle?

Florine Fourneau

À propos de moi

Aurélie ROTARDIER, President and Founder, was a victim of child abuse during her childhood, resulting in 12 years in hospital and having had type 1 diabetes as a genetic inheritance from birth. Very concerned by the fight against disease and disability, she has observed that the human and social aspects are still too often lacking for people suffering from serious pathologies.

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